Saw pulmodude today. Chest films looked great. No new lung issues. He’s decreasing my prednisone *slowly* down to 15mg daily until I see him in May, and he has me scheduled for a cardiac echo next week. (People with pulmonary fibrosis can get pulmonary hypertension; since I’ve never had a cardiac echo he wants a baseline.)
Saw an ophthalmologist (eye MD) on Tuesday for some eye issues. Eye pressures elevated. He took some pictures and wants to see me in 6 weeks. He said it may be sarcoidosis, it may be the prednisone. Watchful waiting at this point; pressure is not high enough to start me on any eye drops…but I do have sarcoid dry eyes. I was surprised…he knows his sarcoidosis! Wow!
Tiredness persists. The random sarc zonk and brain fog continue. Sometimes I really hate this crap…and have to remind myself that it is what it is…and that acceptance is the answer to all my problems. Page 417.