Sarc update

Saw pulmodude today. Chest films looked great. No new lung issues. He’s decreasing my prednisone *slowly* down to 15mg daily until I see him in May, and he has me scheduled for a cardiac echo next week. (People with pulmonary fibrosis can get pulmonary hypertension; since I’ve never had a cardiac echo he wants a baseline.)

Saw an ophthalmologist (eye MD) on Tuesday for some eye issues. Eye pressures elevated. He took some pictures and wants to see me in 6 weeks. He said it may be sarcoidosis, it may be the prednisone. Watchful waiting at this point; pressure is not high enough to start me on any eye drops…but I do have sarcoid dry eyes. I was surprised…he knows his sarcoidosis! Wow!

Tiredness persists. The random sarc zonk and brain fog continue. Sometimes I really hate this crap…and have to remind myself that it is what it is…and that acceptance is the answer to all my problems.  Page 417.

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One thought on “Sarc update

  1. Ah, the echo.

    In 2007 I think I had eight of them. Unfortunately, mine are unable to estimate pulmonary pressure because I have no tricuspid regurgitation.

    Unless I have a fat pulmonary artery, or distended right heart, they can’t tell jack about PH from my echos.

    However, they can keep a good eye on the pericardial effusion, which, TBTG has been small and unexciting since mid-2006.

    I usually leave my echos with bruised ribs. I’d rather have 10 right heart caths than one echo.

    Have fun.

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