Learning to live with chronic illness is frustrating.
I have been breathless and dyspneic for the past week. Last night I slept very poorly and didn’t go to church today even though it was Annual Meeting Sunday. I took a shower and afterwards my sat was 84. I’d had enough. I called Dawn. She left church, came home and took me to the ER at Saint Mary’s here in town.
We waited. I was able to do the Sunday NY Times crossword, in ink as per the usual, before I was seen by a doctor. They drew labs, a blood gas and shot PA&Lat chest films before the doc saw me. She was a nice person. They gave me a nebulizer treatment, albuerol and atrovent, which turned me around! It all makes sense now. Fibrosis is a disease of restriction (as opposed to obstruction) and the treatment helped open me up so I could breathe better. She sent me home with a nebulizer machine and a month worth of q4h/wa treatments.
I couldn’t be happier. I’m actually relaxed tonight and feeling rather good. I do see pulmodude in the morning, though. We need to make a decision as to whether I go on oxygen either 24/7 or while I am moving about. I hate to even contemplate that, but as I say, it is what it is. After all, acceptance is the answer to all my problems…